Cripping reproduction: The intersections of pregnancy and disability

Faye Ginsburg, Rayna Rapp

    Research output: Chapter in Book/Report/Conference proceedingChapter

    Abstract

    This chapter covers the global expansion of prenatal and childhood genetic testing, the disability paradox, and shadow eugenics. The complexities of accessing and using prenatal genetic testing vary across social and cultural worlds. Feminist disability scholars and activists have voiced spirited disability rights critiques of prenatal genetic testing since the late twentieth century. Insisting on this important conversation, the disability bioethicist Adrienne Asch consistently asked genetic counselors to consider the intersection of disability rights and genetic counseling. Provider fear is one of several barriers that disrupt and delay maternity care for disabled women. Medical racism shapes care for many: a disproportionate number of younger disabled women are Black and Indigenous, more likely to suffer from the accidents, chronic diseases and malnutrition associated with poverty and discrimination associated with the continued legacies of slavery and colonialism.

    Original languageEnglish (US)
    Title of host publicationA Companion to the Anthropology of Reproductive Medicine and Technology
    PublisherWiley
    Pages282-297
    Number of pages16
    ISBN (Electronic)9781119845379
    ISBN (Print)9781119845348
    DOIs
    StatePublished - Sep 21 2023

    Keywords

    • Childhood genetic testing
    • Disability rights
    • Genetic counseling
    • Medical racism
    • Prenatal genetic testing
    • Provider fear

    ASJC Scopus subject areas

    • General Social Sciences
    • General Medicine

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