Desire for Patient-Centered HIV Care Among Inconsistently Engaged Racial and Ethnic Minority People Living With HIV

Jessica Jaiswal, Marybec Griffin-Tomas, Stuart N. Singer, Helen Maria Lekas

Research output: Contribution to journalArticlepeer-review

Abstract

Many low-income people of color living with HIV are not virally suppressed. More research is needed to understand how socially marginalized, disengaged, or inconsistently engaged people living with HIV (PLWH) contend with antiretroviral therapy (ART)-related challenges, particularly in the context of interactions with HIV care providers. Twenty-seven semi-structured interviews were conducted with low-income Black and Hispanic PLWH in the New York City area who were currently, or recently, disengaged from outpatient HIV health care at the time of the interview. Participants valued patient-centered health care in which they felt genuinely heard and cared for by their HIV clinicians. This desire was particularly pronounced in the context of wanting to change one's ART regimen. Participant emphasis on wanting to manage ART-related challenges with their providers suggests that HIV providers have an instrumental role in helping their patients feel able to manage their HIV.

Original languageEnglish (US)
Pages (from-to)426-438
Number of pages13
JournalJournal of the Association of Nurses in AIDS Care
Volume29
Issue number3
DOIs
StatePublished - May 1 2018

Keywords

  • HIV care
  • HIV care providers
  • HIV disparities
  • adherence
  • antiretroviral therapy
  • patient-centered care
  • retention in care

ASJC Scopus subject areas

  • Advanced and Specialized Nursing

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