Experiences and concerns of family caregivers providing support to people with dementia: A cross-cultural perspective

Susan L. Ivey, Sarah B. Laditka, Anna E. Price, Winston Tseng, Renée L. Beard, Rui Liu, David Fetterman, Bei Wu, Rebecca G. Logsdon

Research output: Contribution to journalArticle

Abstract

We examined experiences and concerns among caregivers of community-dwelling people with dementia from two ethnic groups. We conducted a thematic analysis of responses to the question, 'What is your life like as a caregiver?' in nine focus groups (n = 75) with Filipino and non-Hispanic White caregivers. Constant comparison methods identified themes by ethnicity. Experiences and concerns expressed across groups were related to care recipient symptoms commonly associated with dementia, including severe memory loss and behavioral changes. Participants in both ethnic groups described strategies that help them cope, such as receiving help from family and friends, receiving respite support, and participating in support groups. Filipino caregivers more often emphasized positive aspects of caregiving, whereas Whites often expressed that others do not understand the daily experiences of caregiving. Filipinos more commonly described caregivers as a 'good person' or 'saint' and emphasized that caregiving made them stronger.

Original languageEnglish (US)
Pages (from-to)806-820
Number of pages15
JournalDementia
Volume12
Issue number6
DOIs
StatePublished - Nov 2013

Keywords

  • Alzheimer's disease
  • Filipinos
  • aging
  • focus groups
  • qualitative research

ASJC Scopus subject areas

  • Sociology and Political Science
  • Social Sciences(all)

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    Ivey, S. L., Laditka, S. B., Price, A. E., Tseng, W., Beard, R. L., Liu, R., Fetterman, D., Wu, B., & Logsdon, R. G. (2013). Experiences and concerns of family caregivers providing support to people with dementia: A cross-cultural perspective. Dementia, 12(6), 806-820. https://doi.org/10.1177/1471301212446872