TY - JOUR
T1 - Family Caregiver Support of Patient Self-Management During Chronic, Life-Limiting Illness
T2 - A Qualitative Metasynthesis
AU - Schulman-Green, Dena
AU - Feder, Shelli L.
AU - Dionne-Odom, J. Nicholas
AU - Batten, Janene
AU - En Long, Victoria Jane
AU - Harris, Yolanda
AU - Wilpers, Abigail
AU - Wong, Tiffany
AU - Whittemore, Robin
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This project was supported by the Palliative Care Research Cooperative Group funded by the National Institute of Nursing Research, U24NR014637. Dr. Dionne-Odom receives support from the National Institute of Nursing Research (R00NR015903) and the National Cancer Institute (R01CA229197). This publication was supported by the Department of Veterans Affairs Office of Academic Affiliations through the National Clinician Scholars Program. This publication was made possible by CTSA Grant Number TL1 TR001864 from the National Center for Advancing Translational Sciences (NCATS), a component of the National Institutes of Health (NIH). Its contents are solely the responsibility of the authors and do not necessarily represent the official view of the NIH.
Publisher Copyright:
© The Author(s) 2020.
Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.
PY - 2021/2
Y1 - 2021/2
N2 - Family caregivers play an integral role in supporting patient self-management, yet how they perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers’ processes to support patient self-management of chronic, life-limiting illness and factors affecting their support. Methods included a systematic literature search, quality appraisal of articles, data abstraction, and data synthesis to produce novel themes. Thirty articles met inclusion criteria, representing 935 international family caregivers aged 18 to 89 years caring for patients with various health conditions. Three themes characterized family caregivers’ processes to support patient self-management: “Focusing on the Patient’s Illness Needs,” “Activating Resources to Support Oneself as the Family Caregiver,” and “Supporting a Patient Living with a Chronic, Life-Limiting Illness.” Factors affecting family caregivers’ support included Personal Characteristics, Health Status, Resources, Environmental Characteristics, and the Health Care System. The family caregiver role in supporting patient self-management is multidimensional, encompassing three processes of care and influenced by multiple factors.
AB - Family caregivers play an integral role in supporting patient self-management, yet how they perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers’ processes to support patient self-management of chronic, life-limiting illness and factors affecting their support. Methods included a systematic literature search, quality appraisal of articles, data abstraction, and data synthesis to produce novel themes. Thirty articles met inclusion criteria, representing 935 international family caregivers aged 18 to 89 years caring for patients with various health conditions. Three themes characterized family caregivers’ processes to support patient self-management: “Focusing on the Patient’s Illness Needs,” “Activating Resources to Support Oneself as the Family Caregiver,” and “Supporting a Patient Living with a Chronic, Life-Limiting Illness.” Factors affecting family caregivers’ support included Personal Characteristics, Health Status, Resources, Environmental Characteristics, and the Health Care System. The family caregiver role in supporting patient self-management is multidimensional, encompassing three processes of care and influenced by multiple factors.
KW - chronic illness
KW - family caregiver
KW - life-limiting
KW - metasynthesis
KW - qualitative
KW - self-management
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U2 - 10.1177/1074840720977180
DO - 10.1177/1074840720977180
M3 - Article
C2 - 33334232
AN - SCOPUS:85097759169
VL - 27
SP - 55
EP - 72
JO - Journal of Family Nursing
JF - Journal of Family Nursing
SN - 1074-8407
IS - 1
ER -