TY - JOUR
T1 - “If They Give Their Mind to HIV, They Don’t Last as Long”
T2 - An Explanatory Model of HIV Infection in a Limited-Resource Setting Informs Person-Centered Care
AU - Stonbraker, Samantha
AU - Sanabria, Gabriella
AU - Cunto-Amesty, Silvia
AU - Alcántara, Carmela
AU - Abraído-Lanza, Ana F.
AU - Rowell-Cunsolo, Tawandra
AU - Halpern, Mina
AU - Bakken, Suzanne
AU - Schnall, Rebecca
AU - George, Maureen
N1 - Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The research reported in this publication and the first author were supported by the National Institute of Nursing Research of the National Institutes of Health under award numbers K99NR017829 and R00NR017829. The mentorship of RS was supported by the National Institute of Nursing Research of the National Institutes of Health under award number K24NR018621. The contributions of SB, TRC, and MG were supported by the Precision in Symptom Self-Management Center which is supported by the National Institute of Nursing Research of the National Institutes of Health under award number P30NR016587. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Publisher Copyright:
© 2022 The Author(s).
PY - 2022
Y1 - 2022
N2 - Explanatory models describe individuals’ perceptions of their illness experiences, which can guide culturally relevant care. We constructed an explanatory model of the experience of living with human immunodeficiency virus (HIV) in the Dominican Republic. Following qualitative descriptive methodology, we conducted interviews in Spanish using a semi-structured interview guide developed using Kleinman’s explanatory model framework. Two bilingual researchers coded interview transcripts following conventional content analysis. We used deductive codes from Kleinman’s framework and inductive codes external to the framework to construct the codebook. We arranged codes by shared meaning into categories and constructed themes that reflected shared findings from inductive categories and deductive codes. Twenty-six persons living with HIV participated. They provided rich descriptions of their experiences represented by four cross-cutting themes, which informed the explanatory model. By incorporating this in-depth understanding of patients’ illness experiences into care delivery, nurses can cultivate culturally meaningful and trusting patient-centered partnerships that improve health.
AB - Explanatory models describe individuals’ perceptions of their illness experiences, which can guide culturally relevant care. We constructed an explanatory model of the experience of living with human immunodeficiency virus (HIV) in the Dominican Republic. Following qualitative descriptive methodology, we conducted interviews in Spanish using a semi-structured interview guide developed using Kleinman’s explanatory model framework. Two bilingual researchers coded interview transcripts following conventional content analysis. We used deductive codes from Kleinman’s framework and inductive codes external to the framework to construct the codebook. We arranged codes by shared meaning into categories and constructed themes that reflected shared findings from inductive categories and deductive codes. Twenty-six persons living with HIV participated. They provided rich descriptions of their experiences represented by four cross-cutting themes, which informed the explanatory model. By incorporating this in-depth understanding of patients’ illness experiences into care delivery, nurses can cultivate culturally meaningful and trusting patient-centered partnerships that improve health.
KW - Caribbean
KW - Dominican Republic
KW - HIV
KW - explanatory model
KW - health beliefs
KW - person-centered care
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U2 - 10.1177/23333936221097112
DO - 10.1177/23333936221097112
M3 - Article
AN - SCOPUS:85132281057
SN - 2333-3936
VL - 9
JO - Global Qualitative Nursing Research
JF - Global Qualitative Nursing Research
ER -