"I'm in My Feelings Now": Examination of Advance Care Planning Video Declarations by People with Advanced Cancer from a Safety Net Hospital

Lisa M. Quintiliani, Genevra F. Murray, Katherine Waite, Kathleen Salerno, Gretchen A. Gignac, David Yuh, Angelo Volandes, Michael K. Paasche-Orlow

Research output: Contribution to journalArticlepeer-review

Abstract

Background: Advance care planning (ACP) is underutilized among those with advanced cancer, leading to the potential of not receiving goal-concordant care. Objectives: To understand the experience of patients in creating a video declaration (ViDec) of their ACP preferences and their family member/caregivers' perceptions after viewing their ViDec. Design: Qualitative study among patients and family members/caregivers. Setting/Subjects: Patients were recruited from a large safety net hospital in the United States. Patients with any type of advanced cancer were enrolled to create a ViDec and participate in an individual interview. Patients also identified a family member/caregiver to participate. Measurements: Content and perceptions of usefulness of ViDecs among patients and family members/caregivers. Results: In total, 32 patients participated. Patients had a mean age of 61 (10) years, 15 (47%) were women, 14 (44%) were Black or African American, and 12 (37%) had a high school education or less; 25 family members/caregivers participated. Across all ViDecs, the most common theme pertained to ACP for preferred medical treatments (97%). We describe three case studies of patient and caregiver pairs to represent salient dimensions of our data: (1) high perceived usefulness of ViDec, (2) populations at risk for not receiving goal-concordant care, and (3) varied responses to ViDec among family members/caregivers. Recommendations to improve the ViDec process included providing structured prompts to patients. Conclusions: These case studies highlight the potential high-perceived usefulness of ViDecs across patients and caregivers. ViDecs have the potential to improve care among patients with advanced cancer.

Original languageEnglish (US)
Pages (from-to)28-34
Number of pages7
JournalJournal of palliative medicine
Volume26
Issue number1
DOIs
StatePublished - Jan 1 2023

Keywords

  • advance care planning
  • advanced cancer
  • qualitative
  • safety net hospital
  • video

ASJC Scopus subject areas

  • Nursing(all)
  • Anesthesiology and Pain Medicine

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