TY - JOUR
T1 - Improving Breast Cancer Family Caregivers’ Palliative Care Literacy
T2 - A Pilot Randomized Trial
AU - Schulman-Green, Dena
AU - Linsky, Sarah
AU - Blatt, Leslie
AU - Jeuland, Jane
AU - Kapo, Jennifer
AU - Jeon, Sangchoon
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by a Pilot Project Support Grant from the National Palliative Care Research Center (D. Schulman-Green, PI). The funder had no role in the design, methods, subject recruitment, data collections, analysis, preparation, or decision to submit the paper.
Publisher Copyright:
© The Author(s) 2022.
PY - 2023/2
Y1 - 2023/2
N2 - Self- and family management (SFM) refers to patients’ and family caregivers’ activities to co-manage illness. Two barriers to SFM are low palliative care literacy and lack of goals of care communication, which potentially result in SFM activities that are unsupportive of patients’ goals. Managing Cancer Care: A Caregiver’s Guide (MCC-CG) aims to improve palliative care literacy and communication within a SFM training program. In this pilot randomized trial, we enrolled breast cancer family caregivers and collected data at 0, 1, and 3 months on palliative care literacy, SFM engagement, communication, transitions management, uncertainty, caregiver burden, and caregiver competence/personal gain. Participants (n = 35) had a mean age of 54 (range: 18–81) and were 66% white and 34% racial/ethnic minorities. Intervention participants improved their palliative care literacy and SFM engagement, reduced uncertainty and caregiver burden, increased competence/personal gain, and had more goals of care conversations over time. MCC-CG has preliminary efficacy, warranting further study.
AB - Self- and family management (SFM) refers to patients’ and family caregivers’ activities to co-manage illness. Two barriers to SFM are low palliative care literacy and lack of goals of care communication, which potentially result in SFM activities that are unsupportive of patients’ goals. Managing Cancer Care: A Caregiver’s Guide (MCC-CG) aims to improve palliative care literacy and communication within a SFM training program. In this pilot randomized trial, we enrolled breast cancer family caregivers and collected data at 0, 1, and 3 months on palliative care literacy, SFM engagement, communication, transitions management, uncertainty, caregiver burden, and caregiver competence/personal gain. Participants (n = 35) had a mean age of 54 (range: 18–81) and were 66% white and 34% racial/ethnic minorities. Intervention participants improved their palliative care literacy and SFM engagement, reduced uncertainty and caregiver burden, increased competence/personal gain, and had more goals of care conversations over time. MCC-CG has preliminary efficacy, warranting further study.
KW - cancer
KW - palliative care
KW - self- and family management
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U2 - 10.1177/10748407221099541
DO - 10.1177/10748407221099541
M3 - Article
C2 - 35670155
AN - SCOPUS:85131506756
SN - 1074-8407
VL - 29
SP - 99
EP - 114
JO - Journal of Family Nursing
JF - Journal of Family Nursing
IS - 1
ER -