TY - JOUR
T1 - “I’ve been always strong to conquer any suffering:” challenges and resilience of Chinese American dementia caregivers in a life course perspective
AU - Liu, Jinyu
AU - Lou, Yifan
AU - Wu, Bei
AU - Mui, Ada Chan Yuk Sim
N1 - Publisher Copyright:
© 2020, © 2020 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2020
Y1 - 2020
N2 - Objectives: This study investigated the resilience of a growing but largely underserved and understudied population—Chinese American dementia caregivers, whose experience is embedded in their development throughout the life span, process of migration, and sociocultural contexts. Method: Narrative data were collected from in-depth interviews with 27 Chinese caregivers in New York City. Based on the hybrid grounded theory model, a three-steps coding procedure was implemented to identify themes emerged from the data. Results: 16 themes emerged from the data and fit two categories, challenge and resilience, in each of the four principles—time and place, timing in lives, linked lives, and agency—of the developmental life course perspective. Physical and emotional exhaustion is the challenge theme that was the most frequently mentioned followed by limited knowledge of dementia, navigating the U.S. health care system, and limited time for self-development. Three aspects of resilience—sense of mastery, access to formal and informal support, and commitment to care—were salient among the Chinese American caregivers. Conclusion: This study shed important light on the multifaceted challenges and resilience of Chinese American caregivers. The findings indicate the necessity of developing culturally meaningful services for immigrant caregivers to address their complex challenges and improve their multifaceted resilience.
AB - Objectives: This study investigated the resilience of a growing but largely underserved and understudied population—Chinese American dementia caregivers, whose experience is embedded in their development throughout the life span, process of migration, and sociocultural contexts. Method: Narrative data were collected from in-depth interviews with 27 Chinese caregivers in New York City. Based on the hybrid grounded theory model, a three-steps coding procedure was implemented to identify themes emerged from the data. Results: 16 themes emerged from the data and fit two categories, challenge and resilience, in each of the four principles—time and place, timing in lives, linked lives, and agency—of the developmental life course perspective. Physical and emotional exhaustion is the challenge theme that was the most frequently mentioned followed by limited knowledge of dementia, navigating the U.S. health care system, and limited time for self-development. Three aspects of resilience—sense of mastery, access to formal and informal support, and commitment to care—were salient among the Chinese American caregivers. Conclusion: This study shed important light on the multifaceted challenges and resilience of Chinese American caregivers. The findings indicate the necessity of developing culturally meaningful services for immigrant caregivers to address their complex challenges and improve their multifaceted resilience.
KW - Chinese
KW - caregivers
KW - dementia
KW - immigrant
KW - resilience
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U2 - 10.1080/13607863.2020.1793900
DO - 10.1080/13607863.2020.1793900
M3 - Article
C2 - 32687392
AN - SCOPUS:85088303395
SP - 1
EP - 9
JO - Aging and Mental Health
JF - Aging and Mental Health
SN - 1360-7863
ER -