Parents of children newly diagnosed with type 1 diabetes: Experiences with social support and family management

Ellen M. Rearick, Susan Sullivan-Bolyai, Carol Bova, Kathleen A. Knafl

Research output: Contribution to journalArticle

Abstract

Purpose The purpose of this mixed-methods descriptive study with parents of children newly diagnosed with type 1 diabetes was to explore their experiences with peer social support following the Social Support to Empower Parents (STEP) intervention and the usefulness of the Family Management Measure (FaMM) in this population. Methods Parents who were in the experimental arm of STEP were recruited. Qualitative interviews were conducted (n = 21), and 11 parents completed the FaMM, a quantitative family-functioning measure. Qualitative content data analysis was conducted and compared to the descriptive measure analysis. Findings Three themes were identified: availability, practical tips, and common ground. Five FaMM subscales were reliable (α >.80) in this small sample. Conclusions The findings illustrate that the STEP intervention is helpful, providing the participants with emotional, affirmational, and informational social support. The use of the FaMM is a first step in assessing family management in families with children with type 1 diabetes.

Original languageEnglish (US)
Pages (from-to)508-518
Number of pages11
JournalDiabetes Educator
Volume37
Issue number4
DOIs
StatePublished - Jul 2011

ASJC Scopus subject areas

  • Endocrinology, Diabetes and Metabolism
  • Health Professions (miscellaneous)

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