Perceived support among families deciding about organ donation for their loved ones: Donor vs nondonor next of kin

Liva Jacoby, James Jaccard

Research output: Contribution to journalArticlepeer-review


Background: Families' experiences in the hospital influence their decisions about donating organs of brain-dead relatives. Meeting families' support needs during this traumatic time is an obligation and a challenge for critical care staff. Objectives (1) To elicit family members' accounts of various types of support received and perceived quality of care for themselves and their loved ones when they made the donation decision, and (2) to examine the relationship between these factors and the families' donation decision. Methods: Retrospective telephone interviews of 199 families from different regions of the country were completed. Aside from demo graphic data, the survey addressed perceptions of informational, emotional, and instrumental support and quality of care. Results: One hundred fifty-four study participants consented to donation; 45 declined. White next of kin were significantly more likely than African Americans to consent. Specific elements of reported support were significantly associated with consent to donate. Donor and nondonor families had differing perceptions of quality care for them selves and their loved ones. Receiving understandable information about organ donation was the strongest predictor of consent. Conclusions: Specific supportive behaviors by staff as recounted by family members of potential donors were significantly associated with consent to donation. These behaviors lend themselves to creative training and educational programs for staff. Such interventions are essential not only for next of kin of brain-dead patients, but also for staff and ultimately for the public as a whole.

Original languageEnglish (US)
Pages (from-to)e52-e61
JournalAmerican Journal of Critical Care
Issue number5
StatePublished - Sep 2010

ASJC Scopus subject areas

  • Critical Care


Dive into the research topics of 'Perceived support among families deciding about organ donation for their loved ones: Donor vs nondonor next of kin'. Together they form a unique fingerprint.

Cite this