Perceptions of Treatment Burden Among Caregivers of Elders With Diabetes and Co-morbid Alzheimer’s Disease and Related Dementias: A Qualitative Study

Victoria Vaughan Dickson, Halia Melnyk, Rosie Ferris, Alejandra Leon, Mauricio Arcila-Mesa, Crystalinda Rapozo, Joshua Chodosh, Caroline S. Blaum

Research output: Contribution to journalArticlepeer-review

Abstract

Many older adults with diabetes (DM) have co-occurring Alzheimer’s Disease (AD) and AD-Related Dementias (ADRD). Complex treatment plans may impose treatment burden for caregivers responsible for day-to-day self-management. The purpose of this qualitative study was to describe caregiver perceptions of treatment burden for people with DM-AD/ADRD. Caregivers (n = 33) of patients with DM-AD/ADRD participated in semi-structured interviews about their caregiver role and perceptions of treatment burden of DM-AD/ADRD management. Qualitative data were analyzed using content analysis (ATLAS.ti). Caregivers reported high levels of burden related to complex treatment/self-management for patients with DM-AD/ADRD that varied day-to-day with the patient’s cognitive status. Four themes were: (1) trajectory of treatment burden; (2) navigating multiple healthcare providers/systems of care; (3) caregiver role conflict; and (4) emotional burden. Interventions to reduce caregiver treatment burden should include activating supportive services, education, and care coordination especially, if patient treatment increases in complexity over time.

Original languageEnglish (US)
JournalClinical Nursing Research
DOIs
StateAccepted/In press - 2022

Keywords

  • aging
  • caregiving
  • dementia
  • diabetes
  • qualitative research

ASJC Scopus subject areas

  • Nursing(all)

Fingerprint

Dive into the research topics of 'Perceptions of Treatment Burden Among Caregivers of Elders With Diabetes and Co-morbid Alzheimer’s Disease and Related Dementias: A Qualitative Study'. Together they form a unique fingerprint.

Cite this