TY - JOUR
T1 - Picking up the pieces
T2 - Caregivers of adolescents bereaved by parental AIDS
AU - Rotheram-Borus, Mary Jane
AU - Leonard, Noelle R.
AU - Lightfoot, Marguerita
AU - Franzke, Laura H.
AU - Tottenham, Nim
AU - Lee, Sung Jae
PY - 2002
Y1 - 2002
N2 - This study describes caregivers of adolescents whose parents died of AIDS and examines how caregivers perceive the impact of raising bereaved adolescents. For adolescents bereaved by AIDS, 65 non-parental caregivers were recruited and assessed twice over 6 months. Most caregivers (89%) were female members of the extended family, 49% were married and 29% were employed. Caregivers were older and more likely to be employed than parents with HIV (PWH), but were similar in ethnicity, partnership and financial status, and religiosity. Caregivers had generally been selected by the parent prior to death (66%) and most caregivers (75%) had at least moderate involvement in the care of the youth prior to parental death. Caregiver-youth relationships were stable (91%) over a 6-month period. Caregivers were significantly less emotionally distressed than PWH had been. Caregiver burden was rated as moderate; the number of positive caregiver-youth relationships decreased significantly over 6 months. Family caregiving is a common, ongoing and stable relationship in families coping with AIDS.
AB - This study describes caregivers of adolescents whose parents died of AIDS and examines how caregivers perceive the impact of raising bereaved adolescents. For adolescents bereaved by AIDS, 65 non-parental caregivers were recruited and assessed twice over 6 months. Most caregivers (89%) were female members of the extended family, 49% were married and 29% were employed. Caregivers were older and more likely to be employed than parents with HIV (PWH), but were similar in ethnicity, partnership and financial status, and religiosity. Caregivers had generally been selected by the parent prior to death (66%) and most caregivers (75%) had at least moderate involvement in the care of the youth prior to parental death. Caregiver-youth relationships were stable (91%) over a 6-month period. Caregivers were significantly less emotionally distressed than PWH had been. Caregiver burden was rated as moderate; the number of positive caregiver-youth relationships decreased significantly over 6 months. Family caregiving is a common, ongoing and stable relationship in families coping with AIDS.
KW - AIDS
KW - Adolescents
KW - Caregiver
KW - Orphans
UR - http://www.scopus.com/inward/record.url?scp=0036144716&partnerID=8YFLogxK
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U2 - 10.1177/1359104502007001009
DO - 10.1177/1359104502007001009
M3 - Article
AN - SCOPUS:0036144716
SN - 1359-1045
VL - 7
SP - 115
EP - 124
JO - Clinical Child Psychology and Psychiatry
JF - Clinical Child Psychology and Psychiatry
IS - 1
ER -