PREP-T1 (Preteen Re-Education With Parents–Type 1 Diabetes) Feasibility Intervention Results

Susan Sullivan-Bolyai, Sybil Crawford, Kim Johnson, Neesha Ramchandani, Diane Quinn, Bianca D’Alesandro, Kailyn Stern, Terry Lipman, Gail Melkus, Randi Streisand

Research output: Contribution to journalArticle

Abstract

There has been a 2% to 3% increase in Type 1 diabetes (T1D) in children below 11 years old. Preteens (9-12 years old) with T1D are often overlooked regarding future diabetes self-management (DSM) expectations because parents are still in the “driver’s seat.” The study purpose was to explore feasibility/ability to recruit and conduct a two-arm trial on reeducation, collaboration, and social support. One component of DSM was reviewed (hypoglycemia) with preteens (n = 22) and parents (n = 22). The experimental preteens discussed hypoglycemia management with a teen mentor and nurse educator using a human patient simulator for practice, and working collaboratively with parents. Concurrently, mothers met with a parent mentor and psychologist to discuss growth and development, and collaborative shared management. Comparison dyads discussed hypoglycemia management with a nurse. Preteens slightly improved in diabetes knowledge; the experimental arm had higher problem-solving scores. Parents in the experimental arm had higher self-efficacy scores. Findings will inform future research.

Original languageEnglish (US)
Pages (from-to)579-605
Number of pages27
JournalJournal of Family Nursing
Volume22
Issue number4
DOIs
StatePublished - Nov 1 2016

Keywords

  • T1D
  • peer support
  • preteen self-management education

ASJC Scopus subject areas

  • Community and Home Care
  • Family Practice

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    Sullivan-Bolyai, S., Crawford, S., Johnson, K., Ramchandani, N., Quinn, D., D’Alesandro, B., Stern, K., Lipman, T., Melkus, G., & Streisand, R. (2016). PREP-T1 (Preteen Re-Education With Parents–Type 1 Diabetes) Feasibility Intervention Results. Journal of Family Nursing, 22(4), 579-605. https://doi.org/10.1177/1074840716676589