Providers’ Perspectives on High-Quality Dementia Care in Long-Term Care

Jasmine L. Travers, Grace F. Wittenberg, David R. Gifford, Ann Reddy, Marguerite M. McLaughlin, Rosa R. Baier

Research output: Contribution to journalArticlepeer-review

Abstract

Objectives: To understand dementia care providers’ perspectives on high-quality care for persons living with dementia (PLWD) in long-term care (LTC). Design: A qualitative study using a directed content analysis approach. Setting and Participants: Nine national LTC dementia care providers. Methods: We facilitated 5 listening sessions centered around dementia care philosophies, models, and practices. Two researchers first mapped qualitative data to the Holistic Approach to Transformational Change (HATCh) model for dementia care using a directed content analysis approach. They then identified themes and subthemes emerging from the data using a conventional analysis approach. They coded data iteratively and solicited input from 3 additional researchers to reach consensus where needed. Member checks were performed to ensure the trustworthiness of the data during 2 follow-up listening sessions. Results: The 9 participants described the importance of understanding the experiences of PLWDs in order to provide high-quality dementia care and to deliver such care with the residents and their preferences as the focus. They emphasized experiential education as essential for families and all staff, regardless of role. They noted the need to balance safety with resident choice, as well as the corresponding need for facility leadership and regulators to support such choices. The listening sessions revealed areas to foster person-centered care for PLWD, but also highlighted barriers to implementing this philosophy in LTC settings. Conclusions and Implications: Emergent themes included care practices that center on resident preferences and are supported by staff with the experiential education and communication skills necessary to relate to and support PLWD. These findings provide contextual information for researchers seeking to identify and test interventions that reflect LTC providers’ priorities for PLWD and emphasize the need to align research priorities with provider priorities.

Original languageEnglish (US)
JournalJournal of the American Medical Directors Association
DOIs
StateAccepted/In press - 2022

Keywords

  • Alzheimer's disease and related dementias
  • assisted living
  • nursing home
  • person-centered care
  • pragmatic
  • qualitative

ASJC Scopus subject areas

  • Nursing(all)
  • Health Policy
  • Geriatrics and Gerontology

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