Understanding motivators and challenges to involving urban parents as collaborators in HIV prevention research efforts

Mary M. McKay, Rogério M. Pinto, William M. Bannon, Vincent Guilamo-Ramos

Research output: Contribution to journalArticlepeer-review


This study was designed to explore the experiences of urban parents in their role as Collaborative Board members as part of the CHAMP (Collaborative HIV prevention and Adolescent Mental health Project) Family Program Study. The CHAMP Collaborative Board is comprised of urban parents, representatives from schools and community-based agencies and university-based researchers and is charged with overseeing the design, delivery and testing of a family-based HIV prevention program for pre and early adolescent youth. The current qualitative study, guided by the Theory of Unified Behavior Change, is meant to elucidate: (1) pathways to involvement by urban parents; (2) benefits and costs of participating in this collaborative HIV prevention research effort and; (3) the role of social relationships in influencing initial and ongoing participation by parent participants. Twenty-nine parent Collaborative Board members were interviewed for this study. In-depth interviews were audio recorded and ranged from 30 to 90 minutes in length. Transcripts were coded and analyzed using NUD*IST, computerized software used for examining narratives. Findings include community parent members identifying social support and learning opportunities as major reasons for involvement with the Collaborative Board. Prior involvement with other community-based projects and knowledge of at least one other person on the Board also influenced members to join the Board and remain involved over time. Further, recommendations for future collaborative partnerships are made. Findings have direct implication for participatory HIV prevention research activities.

Original languageEnglish (US)
Pages (from-to)169-185
Number of pages17
JournalSocial Work in Mental Health
Issue number1-2
StatePublished - May 22 2007


  • Community narratives
  • Family-based HIV prevention
  • Influential social relationships
  • Pathways to involvement by urban parents
  • Programming
  • Urban pre and early adolescent youth

ASJC Scopus subject areas

  • Social Sciences (miscellaneous)
  • Public Health, Environmental and Occupational Health


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